403309
Position
Patient and Legislative Advocate
Company
Rare Disease "Zebra" Extraordinaire
Location
Washington District Of Columbia UNITED STATES
Bio
Liz Kennerley has been a Patient Advocate for the United Mitochondrial Disease Foundation since she spoke at the very first Mitochondrial Disease Congressional Caucus briefing in 2012. Immediately after, she met her future soon to be internship supervisor at BIO where she worked during the summer of 2013 in the Alliance Development Department. She has since won scholarships to attend rare disease events, including Rare Disease Week, National Organization for Rare Disorders and Global Genes. In addition, she has spoken at quite a few events, as well as a benefit dinner for NextStep, an organization dedicated to helping teenagers transition from pediatric care and relying or parental support to productive young adults fluent in their own medical needs and challenges, as well as, a panel hosted by IDIS pharmaceuticals which focused on expanded access to drugs. Most recently, a same day panel at both NIH and FDA. Both panels contributed to a Critical Path innovation Meeting, which focused on the multiple hurdles and barriers involved in drug development for mitochondrial diseases. She will also participate in a Congressionally Directed Medical Research Program where she will review medical research proposals and help determine which studies will receive funding through the Department of Defense. She graduated from Simmons College in Boston in 2009, with a degree in Society & Health. Her second Major was Sociology, and her minors were Music and Psychology.
Interests
None yet.